Clara Bragg is the 2½-year-old daughter of Texas State graduates Jenny Habingreither Bragg, from San Marcos, and Ryan Bragg.
Clara is also the niece of Hays County Commissioner Will Conley and his wife, Erin and the granddaughter of former San Marcos Mayor, current Texas State Professor of Engineering Technology and Associate Dean of the College of Science and Engineering, Dr. Robert (Bob) Habingreither and his wife, Melinda Habingreither.
Last August, Clara was diagnosed with GM1 Gangliosidosis, an extremely rare terminal neurological disease that causes children to deteriorate as quickly as they develop.
GM1 can lead to blindness, deafness, seizures, inability to move or self-feed, and is ultimately fatal.
There is, however, hope for Clara. Alabama researchers at Auburn University have successfully cured animals with this disease; now they need funds to take the cure to an FDA- sanctioned human trial.
Without this treatment, Clara will slowly fade away and likely die before her 10th birthday. (To read more on GM1 and Clara’s story, visit www.ACureforClara.com)
In honor of Clara’s 3rd birthday, Mocha & Javas is hosting an all-inclusive fundraising event on Saturday, April 8, 2017, at their LBJ location (700 N. LBJ Dr. Ste #100) from 7:00 – 10:00 PM.
This Saturday’s celebration is focused on supporting the Cure GM1 Foundation by raising funds for clinical trials. And their goal is to raise $10,000 for the Cure GM1 Foundation for clinical trials through ticket sales and VIP Sponsorships.
Mochas & Javas has joined the fight and is looking for partners, sponsors and additional support for the “A Cure for Clara” campaign and by supporting this event, you will be giving children like Clara a chance to live, as well as supporting groundbreaking medical history.
This gene therapy is the only case of a fatal genetic disease being cured in the lab. If successful at trial, it could eradicate GM1 from existence and lead to treatments of other childhood diseases.
Please note that the Cure GM1 Foundation is an IRS-approved 501(c)(3) and all donations are tax- deductible; sponsors will receive a receipt for their tax records.
Mochas & Javas wants to wish a special and sincere thank you to their VIP Sponsors, donors and all of those who have supported their efforts thus far!
Mochas & Javas looks forward to seeing you all at their fantastic fundraising event!
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